Isabella: First Day of School for Bella

Thursday, February 4, 2010

First Day of School for Bella

Today was Bella's first day of home school. She did so good. She was in her stander for 30 minutes!! Her new therapist showed us all kinds of new stuff for us to do with Bella. I feel really good about the therapist and what she will be able to do to help Bella. It was a great day!! I couldn't be happier with the way her first day went.
Now off to the library with all the kids :)

4 comments:

Anonymous said...: Three in three days, whats up with that?? love you, matt; Thursday, February 04, 2010 10:50:00 PM
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adrianna york said...: I am glad that Isabella is doing good I wish you all the best. Everyone at my house is doing good. I just wanted to say hi and I will talk to you all really soon. From Adrianna and family; Wednesday, February 17, 2010 5:04:00 PM
Angela said...: Hi! It looks like you and I have had a similar blogging schedule!

When you say home school, what exactly do you mean? You know that's a subject close to my heart.; Sunday, February 21, 2010 7:28:00 AM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.