Isabella: June 2009

Saturday, June 20, 2009

We spent a few days at Children's Mercy this week for appointments and Bella's bronchoscopy. We were originally suppose to stay one night in the PICU after the bronchoscopy, but Bella did so great that they just let us go home. Everything with the bronch looked good. They cut out some granuloma tissue in her airway. She also gained 2 1/2 pounds in the last 6 weeks. She is now up to 25#.

Bella all ready to go back to the OR

Lounging in the CMH wagon between appointments

Bella and Annie hanging out at the Ronald McDonald house

Sisterly Love

Wednesday, June 3, 2009

Busy, Busy

Annie with Aunt Stephanie at Katy Days

Annie with Great Grandma Gudde

She is so sweet!!

Abby and Maddy at the petting zoo at Katy Days

Isabella enjoying herself at Katy Days

Annie is doing great. She nurses ALL of the time. She already sleeps for 5 hrs at night. I can't believe how busy I am with these girls. Abby and Maddy have been a big help. Bella is also doing great. We leave for KC in a few weeks for an EEG and a bronchoscope. Bella will have to stay one night in the PICU after her bronch.

Well enjoy the pics. Hopefully I will start finding more time to get on here. Not only have I not had time to blog, I also have not had time to read others blogs. I feel so out of touch!!

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.