Isabella

Saturday, June 20, 2009

We spent a few days at Children's Mercy this week for appointments and Bella's bronchoscopy. We were originally suppose to stay one night in the PICU after the bronchoscopy, but Bella did so great that they just let us go home. Everything with the bronch looked good. They cut out some granuloma tissue in her airway. She also gained 2 1/2 pounds in the last 6 weeks. She is now up to 25#.

Bella all ready to go back to the OR

Lounging in the CMH wagon between appointments

Bella and Annie hanging out at the Ronald McDonald house

Sisterly Love

8 comments:

aunt amber said...: glad that everything went great for miss bella. and it was nice to you guys...miss you soo much. hugs to all. :); Saturday, June 20, 2009 5:08:00 PM
mommy to Kaden, Brody and angel Ava said...: Love all of the pictures. Bella looks like she is doing so great with her new little sis!!! What a great big sister!!!

Glad her bronch went well!!!; Saturday, June 20, 2009 10:03:00 PM
adrianna york said...: I am so glad that things went good with Isabella. I like the pictures they are both getting so big. I will talk to you soon.
From Kim and family; Monday, June 22, 2009 12:42:00 AM
Angel Gabi's Mommy said...: I love that last pic of Bella and Annie. What a great big sis:)

Kins has that same brown checked outfit as Annie. Oh those girls have so much in common, I can't wait till they are older and can share stories:)

Can't wait to see you in July, I will make my schedule around your visit. You did say the zoo right???

Love you, miss you!; Monday, June 22, 2009 9:05:00 AM
Anonymous said...: Thanks for the pictures. They are so precious!
So glad Bella got a good report and visit!
You all take care this hot summer.
Love,
Aunt Judy; Wednesday, June 24, 2009 11:24:00 AM
The Diva said...: Glad things went well... Bella looks so big compared to Annie! :) How cute! :)

Ashlea; Thursday, June 25, 2009 4:14:00 PM
REJunod said...: So very glad things are going so well!!! God is soooo good, is He not? It's very encouraging to see Bella continue to get better and grow. To God be Praise!!!

Enjoy your blog. Sorry I don't comment much, but I do try to keep up with you all.

Esther (Bonnie's daughter); Sunday, June 28, 2009 9:08:00 PM
The Bryant Family said...: i am so sorry, I am trying to catch up and seem to falling behind more and more....The girls are so cute. I cant get over Bella and her cute ponies....and how big she is getting. Bella looks as though she loves her baby sister....the one of her holding Annie is adorable.
Thanks for keeping us in your thoughts and prayers and for the comments on our blog...it means so much!!!; Tuesday, June 30, 2009 6:53:00 PM

Post a Comment

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.