Isabella: In Memory of Chloe

Monday, June 23, 2008

In Memory of Chloe

Matt opened the newspaper tonight and we were shocked to see the loss of little Chloe Robinson. She was born with TOF and just had her first open heart surgery on the 12th. She passed away on Saturday. She had been doing so well, that she didn't even need her first surgery until she was a year old. I just can't understand why this happens and it just breaks my heart. I have never personally met Chloe or her family. I was given her mothers name by a mutual contact and I phoned her just days before they left for CMH to have the surgery. She was in need of talking to other moms with heart babies. So please keep the Robinson/Johnson family in your prayers as they go through this difficult time.

1 comment:

Caden said...: We will be praying for them.; Wednesday, June 25, 2008 1:21:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.