Isabella: Is that really my Bella girl???

Monday, June 2, 2008

Is that really my Bella girl???

"Hey, look at my tongue."

Bella on the bouncy ball with her Physical Therapist, Julie

"Oh Julie, do you really have to do that to me every time?"

Julie and Mel working with Bella on.....standing!! Yeah that's right, my baby girl has her feet planted on the ground and is standing up with support. Not even one month ago did she even have a planter reflex, and now look at her. She is just so amazing!! Since she started therapy over in Pittsburg, she has been just progressing like crazy.

"I just love therapy!!!"

5 comments:

BeckyRN said...: I cannot believe how great she looks, and how big she is...she looks like a big girl!!! Still cuter than ever though! (but I don't think that will ever change) She looks amazing and I'm still mad at myself for not getting down to see you guys, I miss you all! Give her kisses for me and tell her that I am very proud of her.; Monday, June 02, 2008 10:27:00 PM
The Diva said...: WOW... she looks great! She has made a lot of progress in such a short amount of time! She sure lets you know when she doesn't like something, huh? She just looks so great!

Ashlea; Tuesday, June 03, 2008 9:05:00 AM
Anonymous said...: Bella you are awesome. Keep up the good work. Meme; Tuesday, June 03, 2008 10:12:00 AM
mommy to Kaden, Brody and angel Ava said...: Awww...Bella you are so big!!! Way to go girlie. Keep up the good work and before long you will be walking on those two feet of yours and mommy will be chasing you around...it will be great fun!!! Thinking about you guys...and definitley missing you.; Tuesday, June 03, 2008 10:43:00 PM
adrianna york said...: That is just so wonderful to see how much she has changed in the past few months with everything that has gone on with her. I am so happy that she is doing wonderful. I wish the best of luck to you Isabella.
Love all from Kim and Adrianna; Wednesday, June 04, 2008 5:58:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.