Isabella: Busy, Busy

Wednesday, June 3, 2009

Busy, Busy

Annie with Aunt Stephanie at Katy Days

Annie with Great Grandma Gudde

She is so sweet!!

Abby and Maddy at the petting zoo at Katy Days

Isabella enjoying herself at Katy Days

Annie is doing great. She nurses ALL of the time. She already sleeps for 5 hrs at night. I can't believe how busy I am with these girls. Abby and Maddy have been a big help. Bella is also doing great. We leave for KC in a few weeks for an EEG and a bronchoscope. Bella will have to stay one night in the PICU after her bronch.

Well enjoy the pics. Hopefully I will start finding more time to get on here. Not only have I not had time to blog, I also have not had time to read others blogs. I feel so out of touch!!

8 comments:

aunt amber said...: oh my gosh meg....she is so beautiful. :) I can't wait to hug and kiss on her and Bella. glad that you guys are doing great and as always miss you all soooo much. love you and kive the girls hugs from aunt amber.; Wednesday, June 03, 2009 4:44:00 PM
adrianna york said...: Annie is very beautiful I can't beleave how big she is getting Abby and Maddy and Isabella look good to.
I understand how busy you are with the girls. I wish you all the best I will keep Isabella in my thoughts prayers when she goes and have her test next week in Kansas City. Well I hope to talk to you soon.
From Kim and family; Thursday, June 04, 2009 2:26:00 AM
BeckyRN said...: So I was thinking at first that Annie looked a lot like Bella, but now that I look again I think Matt may finally have a daughter that looks like him!! She is beautiful! What night are you guys going to be at CMH for the bronch, if I work that night you know I will have to come visit!!! Let me know, glad to see that everyone is doing so well. Love you guys!; Thursday, June 04, 2009 3:20:00 AM
Caden said...: She's so adorable!!! I think she looks like Bella! :) We'll be thinking of you guys for her tests coming up.

Ashlea; Thursday, June 04, 2009 8:19:00 AM
Izzy, Emmy 'N Alexander said...: I am sure you are busy. Annie is absolutely adorable.

So glad to see everyone had a good time at Katy Days. Bella is getting so big too! I hope all goes well for your trip to KC.; Thursday, June 04, 2009 10:28:00 AM
The Bryant Family said...: Bella kissing Annie is adorable. They are all growing sooooo...; Thursday, June 04, 2009 1:55:00 PM
Rachel Dominguez said...: She is just to precious. She has to have the prettiest skin!
So glad to see some pictures and glad things are going so well.; Thursday, June 04, 2009 2:06:00 PM
Angel Gabi's Mommy said...: I think I recognized one of those outfits on Annie. She is ADORABLE, but I would expect nothing less:)
I am so bummed I am gonna miss you guys when you're here...of all the dates! I NEVER go out of town, figures!

I hope all is well.
Love and miss you all:); Friday, June 05, 2009 9:19:00 AM

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.