Isabella: Silly Girl!!

Thursday, June 5, 2008

Silly Girl!!

Somehow, Isabella got her shirt up over her head during the night. It was so cute that I had to share it!!

7 comments:

Anonymous said...: It's awesome to see how she is coming along! We thank God for it!

Sure enjoyed seeing you all last week!

I always enjoy seeing both your blogs, and check them out daily. Sorry I've been lax in commenting lately. But want you to know, we appreciate your pix and all the news!

Love,
Aunt Judy; Thursday, June 05, 2008 8:34:00 AM
The Diva said...: That's hilarious! She must have been zonked!; Thursday, June 05, 2008 8:35:00 AM
Izzy, Emmy 'N Alexander said...: How cute is that!; Thursday, June 05, 2008 8:59:00 AM
Anonymous said...: Awww, adorable! How in the world did she do that? LOL -> my new wallpaper!

Aunt Stephanie; Thursday, June 05, 2008 11:38:00 AM
mommy to Kaden, Brody and angel Ava said...: That is so funny. I wonder how she managed to pull that one off??!! Silly girl, and to be able to sleep like that...; Thursday, June 05, 2008 8:56:00 PM
adrianna york said...: Isabella you are a very silly girl I am happy that you are doing so well. I cant wait to see you sometime. Well talk you soon
From Adrianna and her mommy Kim; Saturday, June 07, 2008 2:53:00 AM
Angela said...: Hi! I haven't been on the Internet much this week. I feel so out of the loop!
Love to you all,
Angela; Sunday, June 08, 2008 8:22:00 PM

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.