Isabella: Finally Some Pictures

Thursday, February 19, 2009

Finally Some Pictures

Silly Maddy

Bella cracking up because she sees I have the camera and for some reason that is really funny to her at the moment.

At Physical Therapy playing with a switch toy.

Abby with her Valentine box at her class party

Bella playing with one of her favorite toys

6 comments:

Caden said...: You've got such sweet babies! :) No we need more pics of your belly!!!; Friday, February 20, 2009 8:28:00 AM
Angela said...: Beautiful. These really are the good ol' days.; Friday, February 20, 2009 8:41:00 AM
mommy to Kaden, Brody and angel Ava said...: I can not believe how big Bella is getting. She is so cute!!! Kaden loved that toy too.; Friday, February 20, 2009 8:53:00 PM
adrianna york said...: I am glad that everyone is doing really good. I will keep you all in my thoughts and prayers.
From Kim; Saturday, February 21, 2009 11:28:00 PM
Anonymous said...: Thanks for the pictures and video! They are precious!!!
Hope you're making it good, one day at a time. You're getting closer!
Love,
Aunt Judy; Tuesday, February 24, 2009 7:56:00 AM
Anonymous said...: hey this is your cousin kelly. bella is so precious. i hope she is doing good.; Wednesday, May 13, 2009 12:06:00 AM

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.