Isabella: Happy 4th of July

Friday, July 4, 2008

Happy 4th of July

The family

Bella eating cake

My sis and I

Sweet Bella

Maddy

My three little patriotic princesses

All of the kids

Maddy and Sione

This was Bella's first 4th at home. Last year she was in the PICU on the 4th and missed the whole celebration. She loved the fireworks. She smiled with each bang!!

4 comments:

adrianna york said...: I am glad that Isabella like the fireworks and the bangs. Adrianna did not like the bangs all that much but she like the pretty colors. I am glad that you all had a great 4th of July. All of the kids are getting so big.
Love you all from Adrianna and her mommy Kim; Saturday, July 05, 2008 3:01:00 PM
Avery said...: I have a little girl named Bela Grace that has HLHS...I just stumbled upon your blog from another 'heart' baby's blog and thought I'd say hello! Two little heart girls with the same name! Your Bella is soo adorable and looks like she's doing so great!
Avery (Bela's mom- HLHS); Sunday, July 06, 2008 8:58:00 PM
The Diva said...: You're so lucky she liked the fireworks... Caden screamed through most of it, so we had to take him inside. :(

Very cute outfits for the girls too! It looks like Bella really enjoyed that cake!; Monday, July 07, 2008 8:10:00 AM
Izzy, Emmy 'N Alexander said...: The girls look so adorable in their outfits! Glad you all had a great time for the 4th!

How's the building coming along?; Monday, July 07, 2008 9:51:00 AM

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.