Isabella: Weekend Getaway

Tuesday, July 29, 2008

Weekend Getaway

Amber and I at Margarita's

I don't know what he was laughing about!!

Mike and Amber

My girl Amber and I again. We've known each other since I was 15!!

Matt and I ventured off this last weekend for my birthday leaving the kids at home. My sister-in-law, who is one of our part time nurses, came to stay with Isabella and then her teenage daughter watched Abby and Maddy. We decided to go to Kansas City to see friends. We ate dinner with our good friends Mike and Amber Heavner. Then we headed over to Eudora for a surprise party for Jason Acker. We had a great time, but I missed the girls. I couldn't sleep without listening to Isabella's vent. It was the first time I had been away from her overnight excluding when she was in the hospital. She did great though. I think maybe again one of these days Matt and I will do it again!!

5 comments:

mommy to Kaden, Brody and angel Ava said...: I am glad you had a great birthday. You guys should definitely do that more often, you deserve it. I know what you mean about not being able to sleep without the sound of the vent in the background...it becomes almost soothing : ).; Tuesday, July 29, 2008 8:03:00 PM
Caden said...: That's great that you guys got to get away for a while. I'm glad you had fun, and you deserve it!

Ashlea; Wednesday, July 30, 2008 8:02:00 AM
Anonymous said...: Hey Meg...like I said before, we had a great time. Hopefully we can make it down there for Matt's bday..fun, fun and babysitters which is the BEST part. :) Love you and hope you all are having a great week.; Wednesday, July 30, 2008 1:20:00 PM
Angel Gabi's Mommy said...: I am so glad you guys were able to come and hang with us. And why is it you and I are picture taking fools and we never take pics with each other. Next time we better get it together! When is Bella's next appt? And didn't you say Matt's b-day is in Sept? We will be planning a trip your way.

Love you! Thanks again!; Wednesday, July 30, 2008 5:55:00 PM
adrianna york said...: I am glad that you had a good brithday. I am glad that the girls are getting along ok. Well I hope to talk to you soon.
From Kim and Adrianna; Wednesday, July 30, 2008 6:10:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.