Isabella: Another Day, Another $12,000

Wednesday, August 22, 2007

Another Day, Another $12,000

No seriously that is how much is costs to stay in the PICU for one day. Isabella is already a 2 million dollar baby!!! She's so worth it.
Anyways, Bella had a great day. She was getting weaned off of her oxygen. She has one of her favorite nurses tonight Becky, so I know she is in great hands. Matt got to go by and see her today on his way to a concert. He said she looked great. Becky put the phone up to her ear when I called so Abby and I could tell her hello. Becky said she looked around a little while we were talking to her. She also said she has really noticed her starteling to noises. YEAH!!! I know all of the prayers are working. We will be headed back to KC tomorrow evening to see Bella and stay with her thru the weekend.
Lots of Love
Matt, Meg and Bella

1 comment:

Stephanie said...: She has a two million dollar smile to show for it.
The power of prayer... wow. It's amazing to see what can happen if enough people can believe in it. She has 175 friends now on myspace! YaY!; Wednesday, August 22, 2007 10:30:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.