No change on the echo

We just go results from the echo. There was no change in her pulmonary pressures. This is not the best news. They will do another echo in a week and if there is still no change, then they will be taking her off of the viagra. The comfort team has been meeting with us alot today. We are so frustrated because it seems like nothing is working. We don't know what is going to happen, and that is the scariest part. Apparently the opthamology report actually says that she is blind. They do not believe that she can see anything. The part about needing glasses is if she gets better neurologically and it seems that she can process images in her brain, she will need glasses because of her myopia. The doctors here I think are all really unsure if she is going to live. It is so hard to continue to have hope when the medical teams are loosing their hope. Isabella is having a good day though. She seems happy and content. she is continuing to gain weight. However, Matt and I are having an awful day. I can't understand why and I don't think I will ever understand why we are having to go through this. It is so heart breaking watching your child have to suffer everyday. I am not ready to say that enough is enough with her yet. I still have hope and I still pray everyday that she will get better. My heart is breaking and I don't know about anything right now. I feel so sad, frustrated and angry all at the same time. I just want my baby girl to get better. I want to watch her grow. I can't even imagine life without her. I know that God does eveything out of love. I don't know where I am going with all of this except that I need to let some of my frustration out. I feel like just when we think it is all getting better, someone comes along and busts our bubble. Prayer and lots of it is what we need. Please pray. This is all up to God now. The doctors are down to the last staws on what they can do for her.