Isabella: Finally some pics!!

Friday, January 25, 2008

Finally some pics!!

As you know I like to do the before and after pics. Well this one is for all of our girls at CMH PICU. Remember the Party at My Crib shirt??? Well here she is 5 months ago wearing it. It is way to big here and well just look at her and how far she has come. Well I found the shirt when I cleaning out her dresser. I decided to try it on one last time. Well I got it on her, but barely. And now look at my baby girl. All smiles. All filled out and looking just fantastic!! Not to mention she is off the vent for this pic. Today she has been off the vent for a total of 1 hour 10

minutes. She stayed off for 45 minutes at one time this afternoon. She stayed on room air and she never got below an spo2 of 94%. She had absolutely no signs of respiratory distress. We put her back on the vent because we didn't want to push it. So Bella Baby I am so proud of you. You are wowing the world just as we all knew you would!!

This picture was taken yesterday. She is just so full of smiles. Just look at that big girl.

Here she is all tuckered out. I just love this picture. She is really too cute for words!! Thanks Aunt Steph for the new supply of Baby legs. We love them!!

4 comments:

BeckyRN said...: YEA!!! Pictures!! haha, it feels like it has been forever. She looks great, and I absolutely love that picture of her asleep on the couch, to cute. She is growing so fast! Definately doesn't look like the same baby from 5 months agao! I hope I get to see you guys at your next appointment. Give her lots and hugs and kisses from Becky; Saturday, January 26, 2008 11:49:00 AM
mommy to Kaden, Brody and angel Ava said...: She is getting to be such a big girl!!! What a beautiful smile Bella. You are doing an amazing job at coming off of the vent...keep it up baby girl. Thinking of you always, Amy; Saturday, January 26, 2008 3:40:00 PM
adrianna york said...: Oh look at you Isabella getting so big. Isabella you have a very pretty smile. I really do love the picture cant wait to see more of you and your smileing face and them pretty teeth. Well I am glad you are doing so good.

Lots of love from Adrianna and her mommy Kim; Saturday, January 26, 2008 4:21:00 PM
The Bryant Family said...: She looks great! Thanks for shairing the pictures...; Monday, January 28, 2008 8:21:00 AM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.