Isabella: Check Up Tomorrow

Sunday, April 27, 2008

Check Up Tomorrow

Little Miss Bella Boo showing off that wonderful smile of hers!!

Me and my sis.

Sione and Madison. This was at Sione's birthday party. He turned 3 on Friday and Madison will be 3 this Thursday. My sister and I had them 6 days apart.

The birthday boy

Another of Sione and Maddy because they are just way too cute.

So it was a pretty good weekend. Not much to tell. Tomorrow Bella goes up to KC for her monthly appointment. She will go to cardiology for an echo also. It will be the first time I have taken her without Matt. Erin is going with me. I think we will be okay. I will post a report as soon as I can. I am sure she will have a good one though!!
And, tomorrow is Matt and I's 7 year wedding anniversary!!

4 comments:

Anonymous said...: Precious pictures of all of you!

We pray you and Erin have a wonderful trip today, with good reports!

Love,
aunt judy; Monday, April 28, 2008 9:54:00 AM
mommy to Kaden, Brody and angel Ava said...: Happy Anniversary!!! 7 years is a long time. Thank you...for EVERYTHING...you should have done what you did girlie.

It was really good to see you guys today. Bella is getting so big. I can't believe it. Every time I see her she looks better and better. I hope you had a very safe trip back.

Talk to you soon.

Love,
Amy; Monday, April 28, 2008 6:36:00 PM
Sarah Freund said...: Can't wait to hear how things went. Bella is looking so big and beautiful!

Love you guys!
Sarah; Monday, April 28, 2008 8:59:00 PM
adrianna york said...: Happy Wedding Anniversary to you and Mat. Also happy brithday Maddy and Sonie. I am glad that everything went good with Isabella and she got a good report. I hope to see you all soon.
From Adrianna and mommy Kim; Tuesday, April 29, 2008 12:10:00 AM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.