Isabella: Little Ava Really Needs Our Prayers

Friday, April 18, 2008

Little Ava Really Needs Our Prayers

Ava continues to fight everyday and is in need of our prayers. She was finally extubated after getting her G-tube placement but was unable to stay extubated for long. She has gone into respiratory distress and had to be re-intubated. Now the Dr.'s have had the talk with Amy and Nate about possible tracheostomy and going home on the vent. As most of you know their little boy Kaden is also on the vent. Amy and Nate are amazingly strong people but they are hurting so bad for their little girl. There is nothing like sitting and waiting in a hospital for your child to get better. You are helpless in all ways. Please pray for their strength along with Ava's recovery. These times are so hard when you have to be there at the hospital day in and day out. So again I am asking for anyone who would like to help Amy and Nate out a little bit. Even if you just want to send cards of thoughtfulness. This is the kind of family who would be there at the drop of a hat for anyone else in this kind of situation. Trust me they are amazing!! So please if you can help them in anyway. You can send stuff to:

Children's Mercy Hospitals
PICU- Ava Boeckman
2401 Gillham Road
Kansas City, MO 64108

OR

Ronald McDonald House-Longfellow
Attn: Nate and Amy Boeckman
2502 Cherry Street
Kansas City, MO 64108

1 comment:

adrianna york said...: I wish the best for you little Ava and your family you are my thoughts and paryers.
From Adrianna and her mommy Kim; Saturday, April 19, 2008 3:12:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.