Isabella: First Therapy Appointment in Pittsburg

Monday, April 14, 2008

First Therapy Appointment in Pittsburg

Today we took Isabella to her first occupational therapy appointment in Pittsburg. I was really impressed with them. They were all so nice. Isabella was quite the little show off today. She was awake for the entire time. She cooed and cooed at the therapist and she held her head up. She just kicked and played and had a really good time. They really think she has the potential to completely rehab!! What great news!! Afterwards, we went shoe shopping and then went out for lunch. So it was an eventful day. Isabella is now sleeping. I better go wake her up so she will sleep tonight.

8 comments:

mommy to Kaden, Brody and angel Ava said...: That is great!!! I am so glad that you are getting the opportunity to get out with Isabella. It is good for both of you.

Thinking and praying for you always.

Love, Amy; Monday, April 14, 2008 5:36:00 PM
mommy to Kaden, Brody and angel Ava said...: By the way, how is Matt's job going?; Monday, April 14, 2008 5:38:00 PM
The Diva said...: That's wonderful news! I love hearing updates like that, so keep them coming!; Tuesday, April 15, 2008 8:18:00 AM
The Bryant Family said...: What a great day!!! I am glad Bella is getting stronger and stronger. HUGS--Karen; Tuesday, April 15, 2008 8:29:00 AM
adrianna york said...: I am glad that she is doing great. I just wanted to say hi
From Adrianna and her mommy Kim; Tuesday, April 15, 2008 9:36:00 AM
Anonymous said...: This sounds wonderful! Praise the Lord!

Love, Aunt Judy; Wednesday, April 16, 2008 12:57:00 PM
Anonymous said...: Praise the Lord she is doing great. May she continue to get better, she is a wonderful little girl. Tell Nate and Cathrine Hi. Congrats to Erin on getting married. May God continue to bless Isabella and your family. You guys are in or hearts and prayers.; Thursday, April 17, 2008 7:43:00 PM
Pam said...: Your sweet little girl never ceases to amaze me. She is such a miracle.....and dang, she is too stinking cute too!!

Always keeping you in our prayers!!

((HUGS))

Pam and Rhett; Thursday, April 17, 2008 10:26:00 PM

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.