Isabella: Please Pray for Ava

Friday, April 11, 2008

Please Pray for Ava

Ava Boeckman continues to be at Children's Mercy in Kansas City after her first open heart surgery. She is back on the vent right now following a procedure to get a g-tube placed for feedings. She has has some temps and they found out she does have an infection. Her family desperately wants to take Ava home. They have been in the hospital for over two months now. It is so hard when you have to be there for that long. They don't know when she will get to come home. Matt and I have been talking about what we could do for them as Miracles Happen Ministries. If you would like to help, please e-mail at megangudde@hotmail.com
Things that may be helpful are: Gas Cards, food cards (so they can go out to eat once in awhile), of course money is always helpful, snacks, any regular day to day items that everyone uses such as laundry soap, toothpaste, ect. or even Wal-Mart cards so they can get what they need. Like I said, if anyone would like to help or if you have some good ideas, e-mail and we will get a care package sent to them. To visit the Boeckmans: http://kadenboeckman.blogspot.com
And Amy, I know you are going to try and protest, but you know me!!! We adore you guys and we want to do whatever we can to help.

Also, we are going to start building on the new addition soon. I am going to log all building progress on my blog. I have some before pics I am going to post at http://megangudde.blogspot.com

2 comments:

The Diva said...: That's an awesome idea. I would also suggest a gift card for Amy to get her nails done or a massage. Do you know what room they are in so that I can send them something at RMH?; Saturday, April 12, 2008 9:37:00 AM
mommy to Kaden, Brody and angel Ava said...: Megan, you are too sweet. I haven't checked any blogs lately...haven't had too much computer time, so as I started going through my list and reached yours, well you made me cry. I do know you as much as you know me and I do feel REALLY bad accepting even the offer. I appreciate all that you have done for us, the continued request for prayers and now, well what you are trying to do now. It really touches my heart, more than I would ever be able to express. Thank you so much.

I can't wait to see pictures of the finished house project. I am so excited for you guys!!! I am sure it will be so much easier once your space increases. Can't wait to see the pictures.

Thinking of you guys always.

Love,
Amy; Saturday, April 12, 2008 5:48:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.