Isabella: All is Well

Wednesday, October 3, 2007

All is Well

I am really tired so I am going to make this short. I will post more in the a.m. but I know everyone is wanting to know how the appointment went. The valve that is leaking, used to leak severe and is now leaking mild!!! Cardiology said she is very stable. They said she has gained a little too much weight. Everything looked great. I think everyone was happy to see that she is doing so well.

So that is the short version of our day. I have lots more to tell everyone so I will get some sleep and post again in the morning.

See miracles do happen!!!

Love

Megan, Matt, Abby, Madison and Isabella our Miracle baby!!

Oh yeah, Bella weighed about 17 1/2 pounds today!! Chunky Baby!!

4 comments:

Just Do It Posterchild said...: I am sooooooooooo glad!!!! Thanks for the fast update. I was checking in periodically to see how our angel is doing. God is GOOD!!
Love you all,
Sheri; Thursday, October 04, 2007 6:38:00 AM
BeckyRN said...: YEA!!!!!!! I'm so glad she is doing so well, and things look good, we knew all along she was getting better, they just didn't want to believe us. Way to prove the Drs. wrong Bella! Prayers work! I'm so sorry I didn't get to see you guys while you were back, but I'm sure it was a very busy day. Can't wait to hear all the other good things they had to say. Love you guys, give Bella extra kisses for me.; Thursday, October 04, 2007 1:42:00 PM
Angel Gabi's Mommy said...: YIPEE!!! Bet you never thought you'd hear them same she is gaining to much weight! She is just trying to make up for lost time:)
So glad things went so well, I am still super sad we didn't get to see you, but we will make arrangements real soon. Love to all!!!
Micah; Thursday, October 04, 2007 4:30:00 PM
Anonymous said...: We are so thrilled with the good report on Isabella!!!!!!!! We thank God that the valve is improving!! And we know God can help her in getting weaned off the vent, too. Just thanking God for each day, and trusting Him step by step is a wonderful way to live! We don't know the future, but God does. And HE can help prepare us for each turn in the road, giving us all the stamina we need, as we continually communicate with Him...... telling Him all that's in our heart, good or bad!
Love you! .......Aunt Judy 10/08/07; Monday, October 08, 2007 10:33:00 AM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.