Well I think we know what is wrong with Bella. It seems like the only time she throws up is when we mess with her trach. It is like she gets gagged. She doesn't throw up any other time unless she gets to coughing really big. So I think if we can just keep her hydrated and be a lot more cautious with her trach, it will cut way down on the throwing up. I just know she is not sick. She acts great and keeps improving every day!! I want to share the lyrics from this song with you. It is by Casting Crowns. Everything about it just seems to speak to me about what my life is like right now. It is good to know that God is Good and he will be here for me through the "Storm" Also here is a link to let you hear the song. But please take time and read the words. They are sooo powerful!!! http://www.youtube.com/watch?v=uHdcyue0bSw
"Praise You In This Storm"
I was sure by now
That You would have reached down
And wiped our tears away
Stepped in and saved the day
But once again, I say "Amen", and it's still raining
As the thunder rolls
I barely hear Your whisper through the rain"I'm with you"
And as Your mercy falls
I raise my hands and praise the God who gives
And takes away
I'll praise You in this storm
And I will lift my hands
For You are who You are
No matter where I am
Every tear I've cried
You hold in Your hand
You never left my side
And though my heart is torn
I will praise You in this storm
I remember when I stumbled in the wind
You heard my cry
You raised me up again
My strength is almost gone
How can I carry on
If I can't find You
As the thunder rolls I barely hear
You whisper through the rain"I'm with you"
And as Your mercy falls
I raise my hands and praise the God who gives
And takes away I lift my eyes unto the hills
Where does my help come from?
My help comes from the Lord
The Maker of Heaven and Earth
5 comments:
That makes perfect sense. Kaden still gags some (I am not sure if it is still b/c of the trach or other reasons). When he first came home he would gag constantly when he moved around. He can't throw up b/c he has a fundo but it really bothered him when it was "messed" with. He has gotten real use to it, and I am sure Bella will too. I am so happy that you figured it out. Hopefully this new finding will ease your mind a little and get rid of some stress. Remember to take time for yourself sometimes...I know it's hard but you deserve it. Thinking and praying for you always, Amy
IM GLAD ITS WORKING OUT. THIS SONG IS AWSOME. I AM SO PROUD OF YOU BOTH FOR YOUR STRONG FAITH AND STRENGTH. I KNOW IT IS GOD GIVEN, EVERYTHING GOOD COMES FROM GOD.SHE IS OUR LITTLE ANGEL. GIVE HER A BIG HUG AND KISS FROM US. I AM FEELING MUCH BETTER, SO I WILL BE BY TO SEE YOU GUYS SOON. LOVE MOM
I love the lyrics! Also, I'm glad that you've placed another piece of the puzzle that is Bella. That's always a comfort...and a feeling of accomplishment!
I almost stopped by Monday on my way to pick up Hannah, then couldn't find my checkbook. You've been on my mind...I wish now that I would've stopped in now that I've seen your "down day" blogs.
Love love love,
Angela
The song is beautiful, thank you for sharing. It was good to hear your voice today. Did you get Matt out??? I hope so, it is so important you guys still take time out for yourselves. Your lives are in demand by everyone and it is so critical you guys remember where the demand came from. You brought them into this world together and you should celebrate their lives together! This may sound silly, but I just want you to be sure you guys don't get lost in your surroundings! I miss you all so so much...HUGE HUGS to ALL.
Love you!
Just wanted to drop a note to see how Bella's been doing. Obviously great and keeping you guys busy!!!!! I love the new layouts...the myspace one included. Miss and love you all sooo much and always praying. :-)
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