Isabella: Poker Run

Saturday, September 22, 2007

Poker Run

The poker run was a big success. Thanks to Billy and Leslie Gray for putting it all together. Thank you to all who came out. Matt and I got to escape long enough to come and see the end when they did the raffle. It was nice to get out for a little while. We went to dinner with some family and then came right back home. We were only gone for three hours and I called two times to check on Bella!! She is doing great. It was amazing to see all of the people today. I did not know over half of the people at the poker run, but they still came out and showed their support. That is truely amazing that one little girl can touch so many!! So thanks again to everyone.
Lots of Love
Matt, Megan, Bella, Abby and Madison

1 comment:

Little Smiths said...: Dang, I keep trying to have an excuse to come see you and you keep having your events when I have to work!!! Sheesh! I miss you guys! Not sure if I'm here on the 3rd or not, but if so I expect to see your smiling faces :); Tuesday, September 25, 2007 8:39:00 AM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.