Isabella: Tomorrow is the day!!

Tuesday, September 11, 2007

Tomorrow is the day!!

We will be going home in the morning. YEAH!! Today Isabella's home health nurses came to visit. Her night nurse actually has a child at home who has a trach and is on the vent. Bella is still confused about night and day. She did not go to bed until 9:00 a.m. She is sleeping at the moment but we have been trying really hard all day to keep her awake. When she decides she is going to sleep, she sleeps. She is out like a light. She only woke up briefly during her bath and trach care. She didn't even open her eyes to greet her new nurses. So hopefully she will get back in the swing of things. Well, I have lots to do to get ready to leave in the a.m. Bella is doing great. Prayer does work!!
Love
Matt, Megan, Bella, Abby and Madison

3 comments:

BeckyRN said...: I promise I tried to get her to go to sleep. She didn't even want to sleep when we rocked. I'm thinking that she falls asleep later in the morning in each day, so maybe in like 2 months she will be back to sleeping at night! How did she ever get so confused. Despite what some may say, it isn't the fault of her night nurses. Although we love her and love to play we don't keep her up all night long! She just wanted to spend some quality time with me last night!; Tuesday, September 11, 2007 9:40:00 PM
nic_d said...: I've had alot of fun looking at these pics and seeing how much Isabella has grown! What a blesssing to have such a wonderful group of caring people around to help you all during her hospital stay. Welcome home, Isabella!; Wednesday, September 12, 2007 9:44:00 AM
nic_d said...: This comment has been removed by the author.; Wednesday, September 12, 2007 9:44:00 AM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.