Isabella: A very busy day

Friday, September 21, 2007

A very busy day

We started the day with a bath and a pedicure. Here is Bella's cute little toes!!

Here is Madison getting her toe nails done. Believe it or not, she was scared of the cotton ball. Weird!!

Aunt Paula stopped by with Bella's cousin Hayden. Hayden is such as chunk. We had a weigh in to see who was bigger between Bella and Hayden. Well it was a tie.

Hayden and Isabella. I know they are SOOOOO CUTE

"Hey Bella, what are these really cool toys you have attached to you?"

Uncle Tommy and Bella have special bonding time.

Video of Abby reading (well actually she just has the book memorized) Love you Forever. She wanted to read to her sisters tonight before bed. I thought it was so sweet that I had to capture the moment. I thought I would share it with the rest of you also.

This one I think is really funny. It is a video from this evening with my niece Jarikah, nephew D.J. and then Abby and Maddy. They are singing and dancing to the Naked Brothers Song "Banana Smoothie"

So as you can see Bella had a really busy day. Her aunt Stephanie was her nurse. She had lots of visitors today. Grandma Gudde, Aunt Paula, cousins Hayden, Marlee, Jarikah, D.J., Miranda and Taylor and then Uncle Dan. It was a little crazy around here for awhile.

Lots of Love

Megan, Matt, Abby, Madison and Bella

2 comments:

Angel Gabi's Mommy said...: So how freaking cute are they! I love both videos, but I have to say Abby captured my heart reading to her sisters. I am still waiting to hear from you...it's killing me!
Just want you to know not a day goes by we don't think about you guys. And I am so thankful for your blog, my day is not complete till I get my Bella update:)
Sweet Dreams, love to all!!!
Micah, Jason, Gracie, Angel Gabi, and ???; Saturday, September 22, 2007 12:50:00 AM
BeckyRN said...: So your kids are adorable, and that video is so sweet! You will have to save it, so when they are older and think that they hate each other, you can be show it to them! haha. Isabella looks like she has grown so much, tell her I miss her, and give her kisses for me, but I will see you when you come for you appointment, just let me know what time.; Sunday, September 23, 2007 10:56:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.