Isabella: In the Bumbo!!!

Saturday, September 1, 2007

In the Bumbo!!!

Today Isabella got into the bumbo chair!!! Yeah. She didn't really think too much of it. She is still weak from all of the laying around. She is getting stronger and better everyday. She got new rattles today that wrap around her wrist. She has been happy and kicking her little feet all day. Our friends Amber and Mike came up today with their little ones. Amber stopped in to see Bella and we had a word of prayer. Amber has this awesome faith and I love it when she comes up to the hospital to pray with us. We then decided to go down t

o Crown Center and go to the Irish Fest. Well, it was ten dollars a person just to get in. So, we went and walked around the mall for a little bit and ate dinner. It was nice to just get out for awhile. So it has been a wonderful day. She looks and acts a little better everyday. Here are some new pics of her in her Bumbo chair from today. Also some pics of her sleeping today. I know she is so CUTE!!! Oh and she smiled today. Not a half smile but a full smile. Matt was eating her armpit!!! I guess that is really funny to her.

2 comments:

Erin Daniels said...: I love your painted tootsies. We all miss you so much and can't wait for you to come home. Sione walks around the house saying "Bella! Home! Now!" So you need to listen to your cousin and come home soon. We are all praying for you.
I love you!! Aunt Eenie; Saturday, September 01, 2007 10:53:00 PM
BeckyRN said...: ohh...i love the new pics!!!; Saturday, September 01, 2007 11:38:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.