Isabella: A soon to be Homecoming!!

Tuesday, September 4, 2007

A soon to be Homecoming!!

The news today is that Isabella is suppose to come home next Wednesday. I am so excited. The discharge planner Hillary will be getting everything ready AGAIN for her to go home. We are cutting our nursing from 24 hours a day to just 18 hours a day. This is so we can have time in the evening as a family. Since we have my mom and dad here all of the time we thought we would have plenty of help to manage. She had a very therapeutic day with physical therapy, occupational therapy and music therapy. Music therapy is her favorite. She loves music, especially classical music. So thank the good Lord she got her hearing back!!! So, we are excited, nervous and scared all at the same time. It is a big deal to come home when you have a vent and a g-tube. She continues to teeth but has not gotten any new teeth in. Her new fav thing is ice chilled pacifiers. Well, not too much to report today. She continues to make progress and as always we thank everyone for their prayers. She is living proof that prayer works!!

2 comments:

Sarah Freund said...: I have mixed feelings about Bella going home! What will I do without her on the weekends?! ...but I know she's only going to get better at home.

Last night we did get to have some special Bella-Sarah time though. We rocked and read all of her books and she had such a great time. She was happy and kicked the whole time. I don't know what she liked so much-the reading, the rocking, being held? She was a happy (and purposeful) girl though!

Much love,
Sarah; Tuesday, September 04, 2007 8:40:00 PM
Angel Gabi's Daddy said...: That is such amazing news. Hopefully we can come up and see you guys tomorrow if that works. Micah and I will be praying very hard and making sure to have a good talk with Gabi to hold Bella's hand really tight to make sure she goes home and stays home this time!; Tuesday, September 04, 2007 9:06:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.