Isabella: Change of Plans

Monday, February 11, 2008

Change of Plans

Okay so we are not headed to KC this morning. We have just had a major ice storm so we are staying home!!!

3 comments:

Angel Gabi's Mommy said...: Better to be safe than sorry! Darn I was really hoping you would be able to provide us with an update on Ava. Well we will all just have to stay in touch, hopefully Amy will be able to post later today!
When will you head to KC now?

Love you, miss you!; Monday, February 11, 2008 11:26:00 AM
Shannon @ Gabi's World said...: You are very welcome! It was my pleasure to do the button.

BTW, I just adore Casting Crowns and that song always gets me choked up!; Monday, February 11, 2008 1:38:00 PM
Angela said...: It's good to see a post! How are you feeling post-surgery?

I swear, if we have one more ice storm, I'm going postal! Ha! The forecast in San Antonio is in the 60s and 70s. Maybe I'll head for the border!

Love you guys!
Angela; Monday, February 11, 2008 3:13:00 PM

Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.