Isabella: Prayers for Ava

Monday, February 11, 2008

Prayers for Ava

Okay we need some serious praying. Micah has receieved a text from Amy that indicates little Ava has made it through surgery. However, they are putting her on ecmo. I know most of you don't know what ecmo is, but it is a heart lung machine that does the work for the body. It is really common for premies who have underdeveloped lungs to go on ecmo. However, they are using it more for other reasons. I hate it say it but ecmo is really really scary buisness. I know it is something Matt and I were fearful of all of our months in the PICU. You hate for anyone to ever mention "ecmo" So this is why Ava really needs your prayers. As we have seen with Isabella and with Amy and Nate's little guy Kaden, God does perform miracles. So Lord we are asking you for miracles for Ava. And Lord we are asking you to give Amy and Nate the strength they need to be there for Ava.
Please stop by http://kadenboeckman.blogspot.com/ to let them know you are praying and thinking of them.
I know Matt and I got alot of strength from the numerous people who just said "we are praying" or "you are in our thoughts and prayers" Trust me it helps!!
Thanks
And Amy and Nate, Matt and I are praying!!

1 comment:

adrianna york said...: Ava you are in my thoughts and prayers I am so sorry that you are not feeling very good. If you need anything just let me know. Hope that you get to feeling better.
From Adrianna and her mommy Kim; Tuesday, February 12, 2008 7:22:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.