Isabella: Going on Bypass

Thursday, February 21, 2008

Going on Bypass

Yesterday, Nurse Carrie let the girls get in the crib with sis

Sending Bella off to surgery this morning. My heart is breaking

They updated just a little bit ago that Dr. Lofland had made the incision in her neck to start bypass. I would guess she is on bypass now and they have started. As soon as they get in they will let us know. ENT scoped her airway earlier and took off the little tags around her stoma. All is well. Please continue to pray. We are nervous but confident. Child life came and got Abby and Maddy to take them upstairs to play.

1 comment:

Tyler Patrick Breuer said...: Thanks for the pictures! Too cute! Looks like the girls definately enjoyed getting in the crib with her! WOOT!

Kathleen Breuer
www.breuerfamily.com; Thursday, February 21, 2008 12:13:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.