Well, it is not pneumonia. They did a chest x-ray today and they saw something that was concerning. So they admitted her to the PICU and then took her down for CT scan. Well it turns out she has an anurysm on her heart. It looks to be right at the conjunction of the piece they put in during her truncus repair. It is none as the homograft. So they won't let us go home. They said they can't risk her going home and bleeding out. Her surgeon is out of town until Monday so we are sitting and waiting. They said they don't know the exact date, but she will have to have open heart. I am going to guess for next Tuesday since her surgeon is gone. Unless they feel it is necessary before then. So please start praying. I am not super concered at this point. We knew we would be having open heart sometime but not this soon. It is a big shock. It totally stinks and I am not happy about it but I feel peace. I feel she is strong enough for surgery and I pray she has a quick recovery this time. One really good thing is that she has a trach and the vent. It will make surgery that much better. So anyways I don't know any other details. It will depend on more tests about how serious this may be. I think it depends on exactly where the anyrysm is located. All I can say at this point is pray pray pray. I think it will be at least two to two and 1/2 weeks before we come home.
Also please continue to pray for little Ava. I am hoping we can catch up with her family tomorrow and finally meet!!
Megan
7 comments:
Megan, Stacey called and let me know what was up. I can't believe it! I have to go to a BLS class tomorrow at the Northland, but will try to stop by afterwards to see you guys. My class ends at 4, so I'll try to come up after that. I'll say some hard prayers for her in the mean time. Give her kisses for me. Love you guys, and hang in there.
THAT PRECIOUS BABY WILL DO JUST FINE, WE ARE ALL PRAYING FOR HER TO HAVE A SPEEDY RECOVERY. I REMEMBER HOW MUCH BETTER SHE FELT AFTER HER LAST OPERATION. THIS WILL HAPPEN AGAIN. LOVE GRANDMA GUDDE
She is so strong Megan and will do awesome. I will try to call you guys in the morning and make my way over there later tomorrow if that's ok. I'm asking Jesus to wrap his arms around Bella and you guys, bring you comfort and peace. We love you!
So glad you took your laptop so you could keep us informed. Yes, we are praying for Bella and you all. The Lord got you to KC at the right time, and He can keep you all in His peace and protection. We pray the Lord will give the doctors all the wisdom for taking care of everything during this surgery. We're so glad you have your surgery behind you, Megan. There's a song that says, "Lord, You do all things well!" He never fails. He will keep you all! He's a personal God!
Love, Aunt Judy & Uncle Paul
Hi Megan. We are praying for Isabella. Let me know if you need anything while you are at the hospital. Spring
The good thing is they prepared you for this when you left after the last surgery. But gees oh petes I was hoping you guys could be at home with her a little longer. I will say this though, way to follow your intuition. You knew something was wrong and because you chose to call attention to it you got her the help she needed, before something terrible happened.
I know you have a great support group there but please let me know if there is anything Jason and I can do. We are not coming back to KC again until the 21st (late), but if need be I can always come back sooner!
We will keep you all in our prayers. Gabi is already at the hospital with Ava I will be sure she checks in on Bella too!
As I told Amy yesterday...
If God brings you to it,
He will also get you through it!
Bella is one of the strongest most determined babies we know, she will pull through this as well. Be strong!
We love you!!!
Micah, Jason, Gracie, Angel Gabi, and Kinsley
You guys are always in our prayers but we are praying extra hard for you guys! Keep us in the loop.
Love Ya Guys
Acker Family
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