Isabella: Welcome Ava!!

Saturday, February 2, 2008

Welcome Ava!!

On Friday evening, our blog friend Amy gave birth to little Ava Rae. Some of you may know the Boekmans' story, if not here is a very short little overview. Amy and Nate have one little boy named Kaden. He was born with a hole in his diaghram and he is on the ventilator at home like Bella. Now they have Ava. She has Turners Syndrome and Hypoplastic Left Heart Syndrome. (Amy let me know if that info is not correct.) Anyways she will undergo open heart sometime next week. She is doing really well and is at Childrens Mercy. We are so thankful that Ava has arrived safely. So please stop by their blog and wish them well and send some prayers their way. To see this amazing family just use this link http://kadenboeckman.blogspot.com/

In other news, Isabella is doing great. She is feeling well and it is suppose to be nice tomorrow, so we are debating about taking her to Matt's sisters for the super bowl. As of right now, it looks like we are going to go. That also depends on how I am feeling.
So I think that is it for now. I am going to try to post some pictures later today.

2 comments:

adrianna york said...: Good luck I wish you the best of luck without a night nurse if you need anything just let me know. Well I just wanted to say hi to you Isabella and your family.
From Adrianna and her mommy Kim; Sunday, February 03, 2008 2:31:00 AM
mommy to Kaden, Brody and angel Ava said...: Thank you so much for the prayers. I hope that you start feeling better after surgery. Just remember to take care of yourself and get lots of rest. I am glad to hear Isabella is doing well. Take care and thanks again. Thinking and praying for you always, Amy; Sunday, February 03, 2008 7:30:00 PM

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Story of Isabella Grace Gudde

Isabella was born December 23, 2006. She was born with a congenital heart defect called Truncus Arteriosus. She also was diagnosed with a deletion on her 22nd chromosome known as DiGeorge Syndrome. She had her first open heart surgery Febuary 27, 2007. She had 5 med flights last year. She had pulmonary hypertension and kept going into respiratory distress. After the 4th med flight, they decided to put in a trach and put her on the ventilator. She was home for 4 days before she was flown back. The fifth time was the worst. I really thought we were going to lose her. She again showed great strength and determination. She had a cardiac arrest on Aug 1, 2007. She was left brain damaged and we were told she was blind and deaf. Matt and I never accepted this fate and as time has gone on we have seen miracle after miracle. Bella now has her hearing back and much of her sight. She is still very far behind, but is making progress everyday. She came home September 12, 2007 after spending almost 160 days at Childrens Mercy in 2007. She was at home up until this February. She went in for her monthly check up and we found out she had a huge aneurysm at the conduit site on her heart. She underwent her second open heart surgery on February 21, 2008, just 6 days short from being one year post op from her first surgery. She is now home and doing fabulous. Enjoy the stories of our everyday miracles with Isabella.